The grandest sight to see
Was something lovely wrapped beneath the tree
But Heaven only knows
That packages and bows
Can never heal a heartached human soul
That wars would never start
And time would heal all hearts
It’s been a while since I wrote you and I’m taking a leap of faith as I write to you again this year, but what do I want for Christmas???
Well, since you asked, here it is. It’s a bit unusual, but it’s my grown up Christmas list.
This past year, I was named the Executive Director of the CTBTA and the position has been extremely rewarding and fulfilling. I truly believe that in the not-too-distant future, our state will be a ‘center for excellence’ in brain tumor care and treatment, but there is much work to be done and maybe you can help! So, here goes nothing…
First, please help the hard work of our organization so that we may continue to enable the doctors and researchers to advance treatment methods. Brain surgery is certainly not fun and takes months, if not years, to fully recover, so we want to see the day that surgery can be less invasive and to continually improve the standard of care for brain tumor patients.
Next, we need more clues and positive results to understand the drivers and causes of a brain tumor. Help us to understand the underlying cause of a brain tumor so that the doctors and surgeons could take proactive measures to treat this disease. Completion of this will help bring us my third wish, the cure!
Fourth, please bring those who are suffering comfort and support. Whether they are recently diagnosed; a brain tumor warrior; a caregiver; or a parent, friend or family member of someone who is battling this diagnosis or coping with the insurmountable loss, everyone needs additional help and hope. We pride ourselves on doing the best we can do provide hope and support, but our reach only goes so far and additional resources are needed.
Finally, the brain tumor community could use more joy and laughter. This is a difficult diagnosis to cope with, but hope, laughter and joy are the best medicine.
I know this is a lot, and you might not be able to help with everything this year, but it would mean the world to all of us in the brain tumor community if you could help in any way possible. I’d appreciate it!
p.s. I’ll leave cookies and milk!
p.p.s. Don’t forget gifts for Ashley and Coddington!