Let The Music Do The Talking

With everything now behind me, I can now look forward to everything else in store for 2015.  And today, I wish to share with you the early details for our second annual Playing for the Cure: Brainstormin’ benefit concert for brain tumor research.

My mission and goal is simple – I want to spread the word on brain tumors to educate with the hope that my story gives hope to those who are awaiting treatment or currently recovering.  I hope that through this blog, our concert, through The Cusano Family Fund to Benefit Brain Tumor Research (a non-profit corporation which I am working to establish for the benefit of the Yale Brain Tumor Center), and through my work with the CTBTA, awareness will be brought to this very important cause and money will be raised to assist doctors and researchers in finding the cure.

So, mark your calendars for Saturday, September 19th!  My family and I are pleased that The Ballroom at the OuterSpace in Hamden, CT will again be hosting the event and hope to surpass what we did last year.  We hope that you will come enjoy the music of Broca’s Area and other great acts with one common goal in mind: raising money to aid in finding the cure.  Details regarding the event time are still being worked out and will be announced as soon as it is known.  Rest assured though that there will be great lineup of acts and of course, food, drinks and raffles.

My brother Stephen formed Broca’s Area with his classmates at the Hartt School of Music and they have some great things happening right now.  On March 26, 2015, there will be a CD release party at Black Eyed Sally’s in Hartford beginning at 9:00PM.  The album contains five original compositions, all of which I’ve had the privilege of hearing and each song is better than the previous.  

With you, together we are making a difference in the lives of those who are living with a brain tumor and the survivors.  But as a family, we wanted to do more.  So for every CD that Broca’s Area sells, a royalty will be paid to the CT Brain Tumor Alliance (the “CTBTA”).  The CTBTA’s mission is “to raise awareness of brain tumors, provide hope and support for others affected by brain tumors and raise money to support and advocate for cutting-edge research for better treatments and a cure.”  Please come to Black Eyed Sally’s to support the cause and help in this fight!

I am very pleased in witnessing how my family has rallied around my battle – for being able to take something so terrible and turning it into something positive.  Some people tell me that I am inspiration, but if not for my family and the care that I received along the way, none of this would be possible.

Don’t Worry Be Happy

Triumphantly, I made my return to the office last week.  Yes, three-and-a-half weeks removed from brain surgery, I went in.  photo 1I was eager and motivated to do something – better yet, anything other than sit at home and channel surf.  I was well rested and feeling great and had recently received medical clearance from my doctors to return on a part-time basis for a couple of weeks.  But what would I feel like after a 20-hour work week when I had done literally nothing for the past four weeks?  Over time, the answer to this question became clear.

Initially, I was overcome by emotion but also very excited to see my coworkers and peers.  Making the rounds and saying hello to everyone, I felt like an exhibit – “where are your stitches?” and “what are you doing here?” were the common questions.  Perhaps this is my “new normal” but unlike others, I expected to be back that quickly.  My surgeon had predicted I would be out for 3-4 weeks at most and I know how my body recovers and heals.  So when I woke up after surgery with no unexpected side effects, I fully expected to be back to work in no time at all.  Of course though, in a matter of three-and-a-half weeks, over 600 emails had piled up and I needed to sort through them.

Per my doctor’s orders, I was to work no more than 4 hours per day, even though I think I could have done more if I wanted to.  Nonetheless though, I went in and picked up my job tasks right where they had left off before my leave of absence.  Two months before I left, I assumed a new position – Associate Administrator – Marketing and External Affairs.  I decided it was time to step away from my pursuit of the practice of law and instead refocus my efforts in a position to which I felt I could make a career.

I’ll be the first to admit – nobody in the office is more upset than I that I am not an attorney after working so hard for it and putting in the time – but, I came to the realization a while ago that right now, being an attorney is not in the cards for me and just simply not meant to be.  Sure, I was disappointed and frustrated.  I took out student loans equivalent to a second mortgage on law school and was in desperate need of a way in which to repay them.  Furthermore, I had devoted time and money into passing the bar exam three times.  Each time, it was the same result and same old adage – close, but no cigar.  I needed a new goal – something tangible which I knew I could achieve and excel in.  Alas, this opportunity presented itself and I jumped.  I understand the inherent risks in that I am now on a different path than my peers who graduated at or near the same time that I did.  I will watch them as they grow through the ranks of a law firm and make more money than I ever may.  However, at the end of the day, one word assured me of this decision – happiness.

When I think about how I got to this point in my life, I think back on a number of things, namely those who doubted my ability to pass the bar exam due to my cognitive impairments: the neuropsychological evaluator; my law school professors who admired my courage for carrying on; my surgeon’s own admission; my law school dean; my bar exam tutor.  Admittedly, they were all correct.  Yet, my family never once doubted any of my decisions as I moved forward in my life.  Rather, they continually support my daily decisions.  For this, I am forever grateful.

I can’t worry about my future and what successes I’ll find.  While I may not have reached my goal of becoming an attorney, I know success will come because I’ve survived the toughest obstacle of all.  The bar exam may have beaten me down, but my tumor showed me I have what it takes; tenacity, perseverance and the strength to carry on.  I must keep plugging away, fighting adversity and rising to the occasion.  It’s true when they tell you that life isn’t easy.  Take it from me – it’s not.  As the song lyrics go: “In every life we have some trouble.  When you worry you make it double.  Don’t worry, be happy. “

Thank You For Being A Friend

“In sickness and in health.”  Little did I know, a year-and-a-half later, the impact that this phrase would have on my life.  As I headed back to work this morning, I was emotional – overcome with emotion that I had been nursed back to health and able to resume living my life as I had previously.   I am grateful beyond words for all of my caregivers, but especially Ashley.  Over the past month, you have shown me the true meaning of love and what marriage is all about and I could not ask for anything more.   Thank you for all of your support, guidance and encouragement – I love you!

“3 Soldiers Attacked with a Knife in France”, “100 Bodies Found in Police Station”, and “Taking Selfies Likely Caused Plane Crash”; three real-life news headlines from this evening.  If it bleeds, it leads and if you pay too much attention to the ever-present media, the world can seem like a dark and dangerous place.  In today’s world, it’s easy to fall prey to a negative outlook.

When Chris’ surgeon walked in the room to advise us that he would need yet another brain surgery, my heart sank.  While it could always be worse, my anxious self jumped to the worst possible headlines: “Chris Unable to Speak or Function After Brain Surgery” or  “Surgeon Finds Cancerous Tumor Cells After All”.  As humans, we try to remain positive when life throws obstacles in our way.  As caretakers for someone suffering from an illness, we attempt to remain strong, but it’s difficult to not feel defeated or consider the what-ifs.

Despite all the negativity, anxiousness and downright scares that Chris’ new surgery brought, one positive theme emerged: human kindness.  The minute people found out the news, I was overwhelmed with hugs and true concern in the eyes of family, friends and co-workers.  Dinners were prepared for us, visits were made, care packages and cards with inspiring quotes were sent.  photo 1(2)During the surgery, at my most vulnerable, I received countless messages sending love, encouragement and all the luck I could accept.  I was simply uplifted.

While I believe it is important to stay strong and tough on your own, it’s in others’ compassion that we find strength when we need it most.  As a person who needed to be someone else’s rock, it was you that helped me persevere.

photo 2(1)So thank you – all of you – for reminding me to ignore the headlines and to remember that good in the world truly does exist.