There are not many instances where you would say a hospital visit is pleasant or joyous, but our annual check presentation from the Cusano Family Brain Tumor Fund to the Yale Brain Tumor Center stands as one of the few exceptions.
Along with Ashley and my parents, we went back to the place that is all too familiar for all of us. Walking through those doors, I’d be lying if I said a myriad of thoughts wasn’t running through my head. Ten years ago, I thought I was never going to go home from the hospital. Monday was different though. I could not run into the building fast enough as I was beaming with excitement and pride over what my family, friends, community partners and new acquaintances have done, and will continue to champion.
Thanks to all of you for your support this year, we presented a check for $40,904.00!As a third party fundraiser for the Yale School of Medicine, I am proud, and speaking for my family, I know they are too. Because of you, our friends and supporters, there is hope for brain tumor research and for patients. Because of your participation and support, the doctors and researchers were enabled to take their research on central neurocytoma far enough to apply for federal funding from the National Institutes of Health (more on this coming soon). The community has rallied and shown that a brain tumor messed with the wrong person (and family), and I am forever grateful for each and every one of you.
Together, since 2014, this gift fund has raised over $198,000 for The Cusano Family Brain Tumor Fund that is being used toward brain tumor research at Yale. We have also forged relationships and friendships that will last a lifetime – countless partners, supporters and fellow brain tumor warriors that I have met along this journey. Additionally, because of this event, I have friendship with Ed Jr. and the crew at Stony Creek Brewery and hope to have a collaborative effort on a charity beer that was sampled and brewed by Stephen and I. We have also brought awareness to brain tumors and as my dear friend Tracey would say, we are making this journey a little less scary for the next person who is diagnosed. But above all, we have developed a friendship with the doctors, nurses, researchers and development officers at Yale. Each time I see them, I always begin by reminding them of my gratitude for saving my life and enabling me to sit here and write this entry. I am hopeful and confident that together, we can and will make this diagnosis a little less scary.
With all of the good synergy and willingness to collaborate among the doctors, researchers and nonprofits such as the Connecticut Brain Tumor Alliance, better treatments will continue to develop until ultimately, the cure will be discovered.
I am speaking only from what I can see and what I believe, but I trust we are on the precipice of a breakthrough. Sooner rather than later, the brain tumor community will have its “ah-ha!” moment. Until then, our work must go on and we will continue to say thank you in the only way we know how.